Thoughts

Just as most parents knew very little about Down syndrome before they were forced to learn, the public at large has minimal experience. It is our job as parents to our children and fellow citizens, to gently erase the lack of knowledge around us. There are fun ways to do this that do not deplete our positive energy sources.

When Jordan was little (and he was little — always mistaken for months and then years younger), I dressed him in adorable matching outfits; you know — knee socks and knickers that match or hats and sweaters that match. I have three boys, so from a fashion standpoint, this is as fun as it gets! At any rate, we never left the house that Jordan wasn't in a total outfit.

Consequently, when someone stared at the grocery store, I assumed it was because he was so darned cute and mentioned that to the stranger in question. Like this: " I couldn't help but notice you staring at my son — isn't he adorable in that newsboy cap and vest?" To which they would reply rather sheepishly, " Why, yes, he is quite cute and rather small ... how old is he?" This gave me the chance to mention that he had Down syndrome and that kids with Down syndrome are often smaller for their age. By the end of the chat, we usually had Jordan and the curious adult making faces at each other and smiling. He was also pointing out letters at the checkout or counting and the adult marveled at his learning.

One more person knows a tiny bit more about Down syndrome and has put a human face with a condition. This is how we as parents make the world a little less bumpy for our children.